- Published on
luminescence: the emission of light by a substance that has not been heated.
LuMinEssence: the mission of finding light in the dark.
The Book of Alchemy
I spent the day at Buck’s Rock
Giving a tour in the rain
To new campers and their families
Trying to convey the magic
That happens in the summer
And then I made my way
All the way to BAM
The Brooklyn Academy of Music
To see Suleika Jaouad
Fellow AML survivor and
Journal writer who is
Undergoing her third round of treatment and is
Currently on the New York stop of her book tour
It wasn’t until I was sitting down in my seat
That it occurred to me
BAM was the place where I had my first job post-cancer
I didn’t work there for long
I had gone back to work too soon
I didn’t have the stamina to make it through a shift
But I was desperate to get back to normal
I had to ask for permission to sit down during the show
Another usher saw me and scolded,
“We’re not allowed to sit.”
I wanted to say
“I just had cancer.
I had a transplant.
I can’t stand for long periods.”
Instead I pretended I hadn’t heard her and
Fought back tears.
And now I’m nearly 11 years out.
How did I get so lucky to be here?
When Ruth is gone?
When Miguel is gone?
When Katy is gone?
When Miren is gone?
When Suleika has relapsed twice and is likely to be in treatment for the rest of her life?
Watching her standing up on that stage
Looking absolutely radiant in a bright and colorful dress with a thin gold belt
Her pixie hair sleek against her head
Reading her extraordinary words about fear of mice and cancer and treatment
While her husband, Jon Batiste
Played on the piano behind her
The love between them
The way they seem so grounded
So in touch
So in love
It broke my heart a little
The longing for a creative, spiritual, loving partner
Someone
To traipse across this mortal coil with
The heartbreak of tasting it
And having it taken away
Because I’m not enough?
Because it’s not the right time?
Because of so many factors out of my control
The fear of relapse
The fear of being ok
The fear of having what you want
The fear that you will never fulfill your dreams
Reach your potential
Do the thing you came here to do because
Illness
Pandemic
Politics
Global warming
And it wasn’t until I was on the train home
That I realized that I’d spent the day at camp
(The place where I was diagnosed)
And not once thought about getting sick
I was too busy being excited about the summer to come
Thinking about my to do list
Chatting with the new campers
The day was full of synchronicity
Old camp friends messaging out of the blue as I arrived at camp
Being at camp on the day of Suleika’s New York book tour
The New York stop being at BAM
On a rainy day
At the end of April
Something magical
Alchemy
From the French, Latin, Greek, and Arabic
"The pursuit of the transmutation of baser metals into gold,
Search for the universal solvent and the panacea."
Giving a tour in the rain
To new campers and their families
Trying to convey the magic
That happens in the summer
And then I made my way
All the way to BAM
The Brooklyn Academy of Music
To see Suleika Jaouad
Fellow AML survivor and
Journal writer who is
Undergoing her third round of treatment and is
Currently on the New York stop of her book tour
It wasn’t until I was sitting down in my seat
That it occurred to me
BAM was the place where I had my first job post-cancer
I didn’t work there for long
I had gone back to work too soon
I didn’t have the stamina to make it through a shift
But I was desperate to get back to normal
I had to ask for permission to sit down during the show
Another usher saw me and scolded,
“We’re not allowed to sit.”
I wanted to say
“I just had cancer.
I had a transplant.
I can’t stand for long periods.”
Instead I pretended I hadn’t heard her and
Fought back tears.
And now I’m nearly 11 years out.
How did I get so lucky to be here?
When Ruth is gone?
When Miguel is gone?
When Katy is gone?
When Miren is gone?
When Suleika has relapsed twice and is likely to be in treatment for the rest of her life?
Watching her standing up on that stage
Looking absolutely radiant in a bright and colorful dress with a thin gold belt
Her pixie hair sleek against her head
Reading her extraordinary words about fear of mice and cancer and treatment
While her husband, Jon Batiste
Played on the piano behind her
The love between them
The way they seem so grounded
So in touch
So in love
It broke my heart a little
The longing for a creative, spiritual, loving partner
Someone
To traipse across this mortal coil with
The heartbreak of tasting it
And having it taken away
Because I’m not enough?
Because it’s not the right time?
Because of so many factors out of my control
The fear of relapse
The fear of being ok
The fear of having what you want
The fear that you will never fulfill your dreams
Reach your potential
Do the thing you came here to do because
Illness
Pandemic
Politics
Global warming
And it wasn’t until I was on the train home
That I realized that I’d spent the day at camp
(The place where I was diagnosed)
And not once thought about getting sick
I was too busy being excited about the summer to come
Thinking about my to do list
Chatting with the new campers
The day was full of synchronicity
Old camp friends messaging out of the blue as I arrived at camp
Being at camp on the day of Suleika’s New York book tour
The New York stop being at BAM
On a rainy day
At the end of April
Something magical
Alchemy
From the French, Latin, Greek, and Arabic
"The pursuit of the transmutation of baser metals into gold,
Search for the universal solvent and the panacea."
- Published on
luminescence: the emission of light by a substance that has not been heated.
LuMinEssence: the mission of finding light in the dark.
LuMinEssence: the mission of finding light in the dark.
Church
The warmth of lit beeswax candles
Single flames burn brightly atop
Tall and skinny, gold and yellow stems
Standing in white sand
Aesthetically pleasing, and fire safe
The front of the altar is lined with silver foil
The priest swings a thurible and the
Sweet smell of incense
Fills the air
A cantor with a rich tenor voice
Sings to a bass drone
To quote Mr Minchin
The music is nice, but the lyrics are dodgy
People gathering
On a Sunday
Single flames burn brightly atop
Tall and skinny, gold and yellow stems
Standing in white sand
Aesthetically pleasing, and fire safe
The front of the altar is lined with silver foil
The priest swings a thurible and the
Sweet smell of incense
Fills the air
A cantor with a rich tenor voice
Sings to a bass drone
To quote Mr Minchin
The music is nice, but the lyrics are dodgy
People gathering
On a Sunday