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me. (almost) thirty and fabulous in NYC.
I’m turning 30 in three days. For the last six years, my dream has been to be 30 and FABULOUS in New York City. I was going to celebrate by picnicking in Central Park, seeing a Broadway show, and drinking fancy cocktails. Instead, I will be preparing for a second round of chemotherapy because I have a life-threatening illness called acute myeloid leukemia.
Cancer sucks. I’m not going to lie. No amount of Julie Andrews-Mary Poppins-Maria Von Trapp inspired positivity is going to change that fact. It has made me very, very sick. It makes me feel utterly, utterly exhausted. It has taken a toll on my loved ones. It has put an unfair strain on my still-less-than-a-year-old marriage. It has made our move to NYC harder, and more complicated.
Six weeks before my 30th birthday, I was faced with my own mortality. I was told that if I did not undergo treatment, I would be dead in a month. It was sobering. Treatment was no picnic. I feel like it was worse for the friends and family who looked on feeling helpless (they were not helpless. Their very presence was a gift), all I had to do was lie there. A week ago, I filled out a form that gave instructions for what to do in the event that I couldn’t make decisions for myself.
In terms of a bad situation, I truly don’t have the worst scenario. For now, I’m at home in Brooklyn (!!), in a sunny and spacious apartment, with my truly wonderful and loving husband. I’m receiving treatment at one of the top hospitals on the planet. I have been given an amazing insight into the truly wonderful support network and web of love I am a part of (as written about previously). I have been able to understand how I have positively impacted on other people’s lives. I am loved, held, and cherished.
Friends and family have started asking what I’d like for my birthday. I honestly can’t think of anything materially. I want to be cured. I want to be well. I want to live for another 50-60 years and snuggle my darling husband and tell him every day for forever how much I love him. I want to sing and dance on Broadway and trip the light fantastic and and teach voice and stage plays and write stories and travel to places I haven’t seen. I want to eat delicious food and grow my own veggies and volunteer in community gardens. I want to explore our new neighborhood. I want to play in NYC. I want to read books, see shows, watch films. I want to meet Julie Andrews and thank her for raising me. I want to meet Patti LuPone and thank her for inspiring me. I want to meet Geoffrey Rush and do a master class with him. I want to work. I want to play. I want to live.
In three days, I will be turning 30. I’m in NYC. I'm bald, and dammit, I'm fabulous. There will be no picnic in Central Park, or a Broadway show, or cocktails. That’ll happen when I’m better (you’re all invited. Details to follow). For now, here are my birthday requests (10 for September 10th). They are things I love and want to share. Please do one, some, or any of the below.
You are welcome to share this post. You are welcome to write and share your stories, I'd love to hear from you (although my replies may be slow... chemo brain is real!).
With love and gratitude,
Lu xx
Cancer sucks. I’m not going to lie. No amount of Julie Andrews-Mary Poppins-Maria Von Trapp inspired positivity is going to change that fact. It has made me very, very sick. It makes me feel utterly, utterly exhausted. It has taken a toll on my loved ones. It has put an unfair strain on my still-less-than-a-year-old marriage. It has made our move to NYC harder, and more complicated.
Six weeks before my 30th birthday, I was faced with my own mortality. I was told that if I did not undergo treatment, I would be dead in a month. It was sobering. Treatment was no picnic. I feel like it was worse for the friends and family who looked on feeling helpless (they were not helpless. Their very presence was a gift), all I had to do was lie there. A week ago, I filled out a form that gave instructions for what to do in the event that I couldn’t make decisions for myself.
In terms of a bad situation, I truly don’t have the worst scenario. For now, I’m at home in Brooklyn (!!), in a sunny and spacious apartment, with my truly wonderful and loving husband. I’m receiving treatment at one of the top hospitals on the planet. I have been given an amazing insight into the truly wonderful support network and web of love I am a part of (as written about previously). I have been able to understand how I have positively impacted on other people’s lives. I am loved, held, and cherished.
Friends and family have started asking what I’d like for my birthday. I honestly can’t think of anything materially. I want to be cured. I want to be well. I want to live for another 50-60 years and snuggle my darling husband and tell him every day for forever how much I love him. I want to sing and dance on Broadway and trip the light fantastic and and teach voice and stage plays and write stories and travel to places I haven’t seen. I want to eat delicious food and grow my own veggies and volunteer in community gardens. I want to explore our new neighborhood. I want to play in NYC. I want to read books, see shows, watch films. I want to meet Julie Andrews and thank her for raising me. I want to meet Patti LuPone and thank her for inspiring me. I want to meet Geoffrey Rush and do a master class with him. I want to work. I want to play. I want to live.
In three days, I will be turning 30. I’m in NYC. I'm bald, and dammit, I'm fabulous. There will be no picnic in Central Park, or a Broadway show, or cocktails. That’ll happen when I’m better (you’re all invited. Details to follow). For now, here are my birthday requests (10 for September 10th). They are things I love and want to share. Please do one, some, or any of the below.
- Write to someone you have been thinking kindly about. Make it a person you have not spoken to in a long time. Do it without expectation of a response. Tell them you’ve been thinking of them and why.
- Buy a copy of The Big Issue, or equivalent street mag, from the next vendor you see.
- Pay attention to your breath for one minute. Don’t worry about whether you’re “doing it right” or breathing “properly”. Just pause and watch your breath go in and out for one minute. Repeat throughout the day as you remember this request.
- Read an actual book. Not on a device, an actual book. Smell the pages. Feel the pages between your fingers. Savor the delicious feeling of being-almost-at-the-end and not wanting it to be finished.
- That instrument you’ve always wanted to learn? Work out right now how you can get a hold of that instrument, and seek out lessons. The internet is an amazing place.
- Seek out your local farmer’s market. Buy something you’ve never seen/eaten before and learn what to do with it.
- If you are willing and able, donate blood and/or platelets. Google it right now to find out where you can do so in your city. If you can’t donate, consider sharing information on how to do so.
- If you are willing and able, sign up to be a donor on the bone marrow registry in your country. You could be a life-saving match for someone. Google it right now to find out where you can do so in your city.
- Be kind to yourself. No really. Stop being so hard on yourself. You are awesome and more loved and valued than you realize.
- Remember that you are alive. Remember your passions and what makes your spine tingle with delight, your heart race, and your soul feel happy. Allow yourself to feel sad when you’re down. It’s ok. This too shall pass. The good, the bad, the ugly. Just be here.
You are welcome to share this post. You are welcome to write and share your stories, I'd love to hear from you (although my replies may be slow... chemo brain is real!).
With love and gratitude,
Lu xx
Lots of love
xL
You are an amazing woman! I am going to do as many things on your list as I can. I am on an emotional journey right now and you gave excellent advice. I am sending positive thoughts and energy your way. I live next door to Julio and Mary and know you are special to them. I understand why! Keep being the lovely person you are. ♡
Warmesst regards,
Beth
I know your beautiful sister Anita - beauty inside and out is clearly a genetic trait in your family!
Thank you for your divine reminder of all that is precious and important.
I will pray for you and Anita - I know the long bone marrow transplant journey you have ahead will be treacherous and incredibly challenging but with your gorgeous attitude - you are 80% of the way to the next 60 magical years of your life.
Love and hugs
Fleur x
I am shocked and saddened to read of what you've been going through. I find your writing beautiful and inspiring though, and please know that I will share your post and I will take on board your requests.
You will be in my prayers and I hope to read of your continued positivity and healing.
Happy birthday from one Luisa Lyons to another. 30 and TRULY fabulous.
With love from Norfolk, England xxxxx
Happy Birthday for tomorrow... Xxx
I am Tony's wife and although we haven't met I have had the honor and pleasure of meeting both your mom and Anita. I love your family. I absolutely love what you wrote. Truly inspiring. Yes, you ARE FABULOUS!!! I am not one to post or comment much, but just a note to say you are in my prayers and looking forward to seeing your photos of your bday celebration. Sending love your way.
With the biggest and gentlest loving hug, xxxxx Julia
Thank you for your birthday list. Without even realizing it, I have already began accomplishing it as of this morning with popping open a new book: "The Art of Racing in The Rain" (I recommend!). Happy Birthday and know that you have inspired the masses with your courage and ingenuity :)