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I was a non-smoking rarely drinking vegetarian who exercised regularly and meditated. On July 23, 2014, six weeks before my 30th birthday, I was diagnosed with acute myeloid leukemia. A fast acting blood cancer that more commonly affects men in their sixties.
Although there have been improvements, the treatment for AML has not changed much in the past thirty years. It is painful and debilitating, requiring endless needles, scans, and constant monitoring.
Following a life-saving stem cell transplant at Memorial Sloan Kettering Cancer Center (MSK) in November 2014, I underwent a long and difficult recovery period. I lost weight, gained it all back and then some. I went into early onset menopause. My fingernails fell off one by one. I developed sores on the soles of my feet. I had depression, anxiety, and fits of rage. I lost my libido. I couldn't work. I couldn't ride the subway. Couldn't eat take out. Couldn't go to the theatre. I lost an octave in my singing voice. A lot of the time I just felt really fucking tired.
For much of the past three years I have felt robbed. I did all the "right things" and I still got blood cancer. It took me out of commission for almost two years. The emotional and mental side effects are an ongoing battle.
While the five-year survival rate for leukemia in general is over 60%, the five-year survival rate for AML patients is currently at about 26%. We still do not know what causes leukemia.
I am alive today thanks to the amazing work of my team at MSK. Their research is ongoing, and expensive. Imagine if we could find a way to test marrow without painful needles? Or provide treatment that isn't so debilitating? What if we knew what causes leukemia in the first place and could prevent it from occurring again? What if we could make leukemia a disease of the past?
This is why, on November 5, 2017, a week after the third anniversary of my transplant, I’m going to be running the NYC Marathon. You can support me by donating to Fred's Team. Your donation will ensure the amazing folk at MSK can continue their research in making leukemia history.
Will you join me?
Although there have been improvements, the treatment for AML has not changed much in the past thirty years. It is painful and debilitating, requiring endless needles, scans, and constant monitoring.
Following a life-saving stem cell transplant at Memorial Sloan Kettering Cancer Center (MSK) in November 2014, I underwent a long and difficult recovery period. I lost weight, gained it all back and then some. I went into early onset menopause. My fingernails fell off one by one. I developed sores on the soles of my feet. I had depression, anxiety, and fits of rage. I lost my libido. I couldn't work. I couldn't ride the subway. Couldn't eat take out. Couldn't go to the theatre. I lost an octave in my singing voice. A lot of the time I just felt really fucking tired.
For much of the past three years I have felt robbed. I did all the "right things" and I still got blood cancer. It took me out of commission for almost two years. The emotional and mental side effects are an ongoing battle.
While the five-year survival rate for leukemia in general is over 60%, the five-year survival rate for AML patients is currently at about 26%. We still do not know what causes leukemia.
I am alive today thanks to the amazing work of my team at MSK. Their research is ongoing, and expensive. Imagine if we could find a way to test marrow without painful needles? Or provide treatment that isn't so debilitating? What if we knew what causes leukemia in the first place and could prevent it from occurring again? What if we could make leukemia a disease of the past?
This is why, on November 5, 2017, a week after the third anniversary of my transplant, I’m going to be running the NYC Marathon. You can support me by donating to Fred's Team. Your donation will ensure the amazing folk at MSK can continue their research in making leukemia history.
Will you join me?
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